Our group is keen to improve communications and collaborative working with the wider research community, including clinical research fellows, research nurses and all staff that support research delivery at sites across the UK; and also with healthcare professionals involved in delivering MND clinical care so that they can support and advise their patients about latest research developments and opportunities.

We invite all staff working on MND clinical & healthcare research projects and healthcare professionals involved in MND clinical care within the UK to join our mailing list, to keep up-to-date with research developments and opportunities.

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Get involved as a researcher

We have built a network of MND researchers across the UK. We are keen to expand this to ensure every patient diagnosed with MND has the opportunity to participate in research should they wish to. If you are a clinician or other healthcare professional who is carrying out MND research as a Principal Investigator, or are keen to become involved, please consider becoming a member of the group, or contact us to explore how we can support you.

The group oversees the delivery of the NIHR CRN Portfolio of MND studies and recommends ways to improve the feasibility of studies to ensure they are able to meet their targets. We can also provide early advice on whether a potential study will be supported by the clinical community, and the feasibility of carrying out the planned research successfully within the patient population. The group meets monthly by videoconference. If you are an MND researcher and would like to contact the group about a project, get in touch by email: info.ukmndcsg@gmail.com