Get involved

Find out how to take part in or support MND clinical & healthcare research as a patient, healthcare professional, research site or stakeholder.


Research studies

There are many MND research studies taking place across the UK, and new studies open to recruitment on a regular basis.

Please be aware that all studies are required to have eligibility criteria to ensure that the study is carried out safely and the research question is answered, therefore it might be that some of the studies are not suitable for you to participate in.

Patient and public engagement

The Clinical Studies Group seeks to involve patients and carers in all aspects of our work, and appreciates input from our lay members who provide their perspective as a person affected by MND into the development, management and reporting of clinical studies. If you would like to become involved with the group as a lay member, please email us.

Healthcare professionals & research sites

We are continually developing new content to support healthcare professionals, research staff and study sites. To bring everything together, we have created a new section on the website dedicated to you. You can find this under "Healthcare Professionals" on the navigation pane at the top of website.

Our group is keen to improve communications and collaborative working with the wider research community, including clinical research fellows, research nurses and all staff that support research delivery at sites across the UK; and also with healthcare professionals involved in delivering MND clinical care so that they can support and advise their patients about latest research developments and opportunities.

We invite all staff working on MND clinical & healthcare research projects and healthcare professionals involved in MND clinical care within the UK to join our mailing list, to keep up-to-date with research developments and opportunities.

Sign up to join the mailing list and receive newsletters and other updates.


Some of the key stakeholders we work with to support the design and delivery of research, and implementation of research outcomes, are:

If you are interested in the work we do and would like to find out more, or feel that the group can support the research that you are involved in, email us.

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