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Join MND Research (previously called TiM-Research) is a digital platform developed by the UK MND Research Institute in collaboration with researchers from the University of Sheffield. The digital platform makes it easier for people living with MND to take part in research from home. By removing the need to travel, it helps participants stay involved for longer and enables researchers to collect vital information from a wider, more diverse community.
People with MND living in the UK can join the research platform by clicking the button:
People with MND living in the UK can join the research platform by clicking the button:
UK Chief Investigator
UK Chief Investigator
Professor Chris McDermott
Research summary
Research summary
You can now take part in MND research without having to travel. In collaboration with researchers at the University of Sheffield, we have created a secure online platform that makes it simple for people living with MND to join studies, share their experiences, and help accelerate discoveries, all from home.
As MND progresses, it can become difficult to travel to hospitals or research centres. This often slows down studies and limits who can take part. Our new online approach makes MND research more inclusive, efficient, and representative.
Anyone with MND is eligible to join, and all they need is an internet-connected device. Once joined, users will receive invites to studies for which they qualify, research updates from around the world, and regular questionnaires related to their MND.
How does Join MND Research work?
How does Join MND Research work?
Anyone living with MND in the UK can sign up using an internet-connected device. Once registered, you’ll receive:
Invitations to research studies that match your profile and interests
Regular online questionnaires about your experiences of MND
Updates on research progress and opportunities to get involved
Your participation helps researchers understand how MND affects people over time, information that’s vital for improving care, designing better clinical trials, and identifying new treatments.
Why take part
Why take part
Join research from home: Take part in studies and complete questionnaires online — no travel required.
Be part of change: Your contributions help make MND research faster and more inclusive.
Stay informed: Receive updates about new studies and research findings as they emerge.
How to get involved
How to get involved
If you live with MND and want to join the research platform you can learn more here. You’ll be asked to provide basic information such as your email address and name, create a password, and you’re all set. Once registered, you’ll receive more information about ongoing studies and can choose to participate in research that interests you.
Current status
Current status
Open to recruitment
Recruitment target
Recruitment target
Open ended - this is a research database and anyone with MND in the UK can participate.
Recruitment groups
Recruitment groups
People with MND
Locations
Locations
Anywhere in the UK - this is an online research database, and people with MND can self-refer.
Contact details
Contact details
Dr Liam Knox, email: L.Knox@sheffield.ac.uk
Key dates
Key dates
Recruitment opening date: 24 July 2023
Planned recruitment end date: There is no planned end of recruitment, however, we will need to reapply for ethics in 5 years.
Sponsor
Sponsor
The University of Sheffield
Funders
Funders
The project is a flagship study of the UK MND Research Institute, funded by patient charities MND Association, My Name’5 Doddie Foundation, MND Scotland, and medical research charity LifeArc.
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