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CHiMND Recruitment flyer - WS1 interviews.pdfComplex Homecare in MND (CHiMND)
Complex Homecare in MND (CHiMND)
UK Chief Investigator
UK Chief Investigator
Dr Eleanor Wilson
Research summary
Research summary
This study aims to improve care and support for people living with MND and their family carers by investigating the roles and responsibilities of paid homecare workers (HCWs). As advancements in health technologies enable more people with MND to live at home with complex interventions such as ventilation and feeding tubes, the demand for support from HCWs increases. However, little is known about the tasks performed by HCWs, their role within the MND multidisciplinary team, or how they work alongside family carers in the home. The study will explore the roles, responsibilities, and care relationships of homecare workers who support people living with MND to manage complex interventions at home.
Current status
Current status
Active – recruiting
Key dates
Key dates
Actual opening date: July 2024
Planned recruitment end date: 30th June 2026
Recruitment groups
Recruitment groups
Homecare workers who have been or are currently involved in the care of someone with MND who has complex interventions such as home ventilation, tube feeding, hoisting, cough assist, etc.
Key stakeholders such as integrated commissioning board members, Continuing Healthcare assessors, care coordinators, and care managers responsible for arranging and supporting complex care packages.
Recruitment target
Recruitment target
20 homecare worker interviews
20 homecare worker diaries
20 key stakeholder interviews
Location
Location
Anywhere in the UK. This study uses online, qualitative interviews and homecare worker diaries. Participants can self-refer.
Contact details
Contact details
Email Nicola Turner (lead researcher): nicola.turner@nottingham.ac.uk or telephone 0115 823 0573.
Inclusion / exclusion criteria
Inclusion / exclusion criteria
Inclusion criteria
Interviews: Homecare worker and key stakeholder participants must:
be >18 years of age
have current or previous experience of supporting someone with MND with complex care needs (homecare workers) or
have current or previous experience of supporting the provision of complex homecare to people with MND (key stakeholders)
Homecare worker diaries: Homecare worker participants must
be >18 years of age
have current experience of supporting someone with MND with complex care needs
Funder
Funder
MND Association
Sponsor
Sponsor
University of Nottingham
Study design
Study design
Observational
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