Neuro Digital: Outpatient Perspectives Study 1.0

Study titleNeuro Digital: Outpatient Perspectives Study 1.0
UK Chief InvestigatorDr Christopher Kipps
Research summaryThe number of people living with a neurological condition is increasing. Various options are being developed in order to improve services for patients. The NHS long term plan identifies a need for care services to provide patients with more options, better support and properly joined up care at the right time, in the best setting.

Remote and digital care can support the aims of the NHS. ‘Remote care’ refers to care when the patient and their healthcare professional are interacting at the same time, just from a different locations. ‘Digital care’ refers to when the patient enters information online and this is reviewed by the care team at a different time or only when necessary. The Covid-19 pandemic led to a sudden increase in the use of remote and digital healthcare. It is likely that remote and digital healthcare will continue to play an increased role in healthcare delivery even when the current crisis is over and face-to-face patient contact is possible again.

In the hurry to move care online, an understanding of the value of face-to-face appointments must not be lost. Equally, it is vital to understand the benefits of remote and digital healthcare.

The Neuro Digital: Outpatient Perspectives Study uses interviews, focus groups and online groups of patients with neurological conditions, their carers and healthcare professionals. It asks what these groups value in face-to-face and remote outpatient appointments for people living with neurological conditions. It also asks how aspects of face-to-face appointments can be best moved to remote or digital care.

The study will last for 7 months. The findings will help find ways of combining face-to-face appointments with remote or digital technologies. We hope this will help to improve patient care and make better use of outpatient appointments.
Inclusion/exclusion criteriaINCLUSION CRITERIA

Patient participants in this study will:
i. have a diagnosis of one of the following neurological conditions: multiple sclerosis, Parkinson’s disease, headache, epilepsy, motor neurone disease, Huntington’s disease and atypical or early onset dementias
ii. be 18 years of age or older and varying in care dependency and functional ability
iii. have attended 1 or more neurology outpatient appointments (face-to-face or remote) over the past 2 years iv. have capacity to consent to the study

Carer participants in this study will:
i. be a carer for a participant defined above
ii. be 18 years of age or older
iii. care for someone who has attended 1 or more neurology outpatient appointments (face-to-face or remote) in the past 2 years iv. have capacity to consent to the study

Healthcare professionals that participate in the study will:
i. treat patients with one of the following neurological conditions: multiple sclerosis, Parkinson’s disease, headache, epilepsy, motor neurone disease, Huntington’s disease and atypical or early onset dementias
ii. have a variety of roles including consultants, specialist nurses and therapists

EXCLUSION CRITERIA

Individuals not meeting inclusion criteria
Current statusActive – recruiting
LocationsSouthampton General Hospital
Contact detailsDr Sarah Fearn - Research Activity Coordinator
S.Fearn@soton.ac.uk
Recruitment group(s)
Recruitment target(s)
Key datesActual opening date: 24 September 2021
Recruitment planned end date: (UK) 28 January 2022
Funder(s)Health Foundation
Improvement Grants: Innovating for Improvement
Sponsor
Study designObservational
Intervention (if applicable)Not applicable
Phase (if applicable)Not applicable
Outcome measures
Publications / Results reportsLinks will be provided when papers are published.
Participant Information Sheet