Open letter to MND researchers – please take a moment to pause and consider
June 2021
Biomarkers study adapted to allow people to provide samples from home
April 2021
COVID Impact – Survey for people living with MND
October 2020
MND clinical studies website launch
February 2020
Optimising NIV delivery: Focus groups for healthcare professionals
August 2019
Position statement – The need for efficacy evidence of edaravone
HighCALS – nutritional management survey for healthcare professionals
October 2018
COMMEND – study open to recruitment
MND diagnosis study
September 2018
HighCALS workshops
May 2018
New research study, ProSec3, recruits first patients
February 2018
New patient and public involvement members
June 2017
Edaravone (Radicava) approved to treat MND in USA – What does this mean for people with MND in the UK?
May 2017
MyTube website
February 2017
NICE guidelines update
