I have a science background and since diagnosis in Aug 2013 I have tried to stay up to date with als research worldwide. I have found it quite frustrating at the difficulty to be enrolled on a clinical trial and sometimes the relevance of a particular trial to my own circumstances. Yet, at the same time I understand trial protocols, ethical review, home office licences etc and the delays these can all cause. Through contact with other MND patients and my own experience I realise how complex and variable the disease is and the challenges this imposes on research. I feel that there has been significant progress with understanding the disease and know how important it is that good quality research continues.