Our aims
- Provide strategic oversight, support and monitor development and delivery of MND research across the UK
- Identify gaps in MND research and agree on priority areas
- Propose and develop new trials and other well-designed studies
- Consider studies proposed by others
- Consider international studies for inclusion in the Portfolio
- Provide MND research advice
- Act as an expert panel for novice MND researchers and new principal investigators
- Ensure patient and public involvement in activities
- Seek opportunities to become involved in initiatives in other related disease areas
News
- Optimising NIV delivery: focus groups for healthcare professionals August 22, 2019
- Position statement – the need for efficacy evidence of edaravone August 20, 2019
- HighCALS – nutritional management survey for healthcare professionals October 4, 2018
- COMMEND – study open to recruitment October 3, 2018
- MND Diagnosis study September 12, 2018
