Our aims

  • Provide strategic oversight, support and monitor development and delivery of MND research across the UK
  • Identify gaps in MND research and agree on priority areas
  • Propose and develop new trials and other well-designed studies
  • Consider studies proposed by others
  • Consider international studies for inclusion in the Portfolio
  • Provide MND research advice
  • Act as an expert panel for novice MND researchers and new principal investigators
  • Ensure patient and public involvement in activities
  • Seek opportunities to become involved in initiatives in other related disease areas

Mary O’Brien

Brief description of yourself and career journey to date? I’m Mary O’Brien, Professor of Palliative and Supportive care at Edge Hill University in the lovely market town of Ormskirk in... Read more →

Dr. Muhammad Rafiq

Brief description of yourself and career journey to date? I am a consultant neurologist with special interest in MND.  I was trained in neurology and did my research in MND... Read more →