MND Diagnosis study
A questionnaire study open to patients and family/caregivers A research team including Prof Mary O’Brien from Edge Hill University, Prof David Oliver from the University of Kent and Prof Chris... Read more →
Our aims
- Provide strategic oversight, support and monitor development and delivery of MND research across the UK
- Identify gaps in MND research and agree on priority areas
- Propose and develop new trials and other well-designed studies
- Consider studies proposed by others
- Consider international studies for inclusion in the Portfolio
- Provide MND research advice
- Act as an expert panel for novice MND researchers and new principal investigators
- Ensure patient and public involvement in activities
- Seek opportunities to become involved in initiatives in other related disease areas
HighCALS workshops
HighCALS is a research programme aiming to help people with MND achieve a high-calorie diet. They are currently looking for MND healthcare professionals & those involved in commissioning / delivering services... Read more →
